We are now getting email updates on Joe via email from the house. This is one of the outcomes from yesterday...another was a plan to handle these desat episodes. In general the meeting went as well as anyone could hope and we fell like we are making good progress, if that is even a word that describes this time, I don't know.
Just to give you an idea, today's update was "Joe had 2 episodes this morning at 6:30 and then 7:15 each lasting 3 min. He has been High Pressuring on and off since about 4:45 when we put him o bed. He had a BM for Night shift and day shift today.". This is exactly what we asked them to do so we have made progress...this really is the kind of info we need.
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